Wednesday

Hey everyone,

I know I have been a really bad blogger, it seems to be I disappeared from the face of the earth....I really was talking a break from everything....

This really were/still are hectic in my life...but hey it is life right?

My daughters surgery went very well, she is actually doing great, my son got married back in March, summer consumed me and my life driving my other daughter every where she needed to be!

We did get to go on a little vacation to PA, visited a few places, went to NYC for a couple of hours one day, drove to Niagara Falls for 2 days, and came back!!!

Now this post is not about crafty stuff either, it is something I need to ask to whoever visits me, it is a great cause, it is something that really touches my heart and I am sure most crafters heart too...we are that kind of people who give and give and give...until we start giving more....

I will post an email I got from a friend of mine, who works with these kids....it is very sad to see them get sicker and sicker and know there is no cure/hope for them....she got an email from this family who needs help with their son, not monetary help, but prayers and cards....I am sure we all have/or could have a card made in a few minutes for this child.

Please read.....and thanks!!!

This is the website for AT if anyone is interested in reading more about it......if not, can you please find it in your heart to send Ryan a card to lift his spirits.


A-T Children's Project


Thanks everyone,




This is the email my friend send me....

Please read the following email. I know this family... Please spread the word to your friends to send cards to Ryan. He has A-T and is one of the few who have lived so long.

~ Rosa

Rosa Fernández
Family Support Coordinator
A-T Children's Project
5300 W. Hillsboro Blvd. #105
Coconut Creek, FL 33073
954-481-6611
800-543-5728
www.atcp.org
rosa@atcp.org

Hello All,

I have some sad news. Our AT son, Ryan (age 34), was just diagnosed with pancreatic cancer.

He developed jaundice, diarrhea, itchy skin, and abdominal swelling in July and spent four days in the hospital having tests. The results were presumptive for pancreatic cancer. He went to the University of CA, Irvine Medical Center in August to have an endoscopic biopsy in August, to confirm the diagnosis. The doctor was able to see the tumor, which is at the head of the pancreas and was pushing on the common bile duct, leading to the jaundice and swelling of the liver. During the procedure the doctor put in a stent, which has relieved the jaundice somewhat and has dramatically improved the itchy skin and diarrhea.

The procedure did, however, precipitate some pancreatitis, which caused great pain for Ryan for the past 3 or 4 weeks. At this time he is doing better painwise, as the pancreatitis has settled down. The treatment for this type of pancreatic cancer is a very tricky sugery called The Whipple Procedure. The recovery is extremely difficult, and the fact of the matter is is that it only adds a number of months to the patient's life. Those added months are not without pain and discomfort. So, Ryan and his dad and I have elected to not treat.

I have a request. Would you all please, please, please send a card to us here at home? I have asked all our family and friends to send cards, which I have begun to string up in his room, so that he can see how many folks are thinking of him. I would like to just flood his room with cards. I have attached a picture, showing the cards we have recieved so far. We have room for many, many more!

Our address is:

Ryan Jones
25252 Bentwood
Laguna Niguel, CA 92677

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